Author: Williamson, H. et al.                     Published: 2016

This article  illustrates  lived experience of receiving LTSS in a managed care model from the family caregiver perspective. In-depth semi-structured interviews were completed with 16 caregivers in four US states with Medicaid managed LTSS (MLTSS). The themes include the importance of the family caregiver as supported and active partners in the provision of MLTSS, the family caregiver experiences with care coordination and access to services in MLTSS, and the family caregivers’ overall impression of MLTSS. Results indicate caregiver advocacy is critical to coordinating needed MLTSS and family support services help caregiver’s maintain their vital role in the MLTSS system.


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